Tag Archives: How to Survive a Plague

Why We Fight

On January 14, 2014, I participated in the panel “How to ACT UP” at the New York Public Library. In keeping with the title, I unexpectedly outed myself as trans. In front of several hundred people.

March on Washington - 1987

ACT UP at the March on Washington, 1987

I spent seven years in ACT UP (The AIDS Coalition to Unleash Power). We demonstrated by marching in the streets, disrupting FDA hearings, and throwing the ashes of our loved ones over the White House fence. We were trying to save lives and the government wasn’t paying attention. The drug companies were overcharging for ineffective drugs. My buddies were dying. We were consumed with anger.

I was one of many activists who burned out. When I left ACT UP I lost contact with most of my activist friends. I went back to my normal life. I became unmoored. I was not the only member who suffered from loneliness and the loss of meaning in my life. We started talking to each other again after Spencer Cox’s death. We did not want to lose another comrade. Continue reading